Sunday, 30 December 2012
Friday, 28 December 2012
My favourite moment of 2012
Me with Rebeka, Lydia and Rachelle Wyse (Esther not pictured) |
Before 2012 draws to a close, I want to share my favourite
moment of the year with you. It happened in Washington last July, during the American
conference for people with my physical disability, osteogenesis imperfecta
(brittle bones).
While I was enjoying a Saturday night party at the hotel, I
came upon these young pretty girls with OI enjoying cake with a middle-aged
couple. When I asked the couple how they all knew each other, they said they
were with four of their children adopted from China.
Originally from Illinois, Keith and Cheryl Wyse have lived
more than 10 years of their lives in China. They became passionate about establishing
a home for orphaned children with OI after adopting twins Rebekah and Rachelle
in 2002. I met the twins, and also two of their other adopted daughters, Lydia
and Esther. The Wyses have eight children, and of the six adoptees, four of them
have OI.
When I met with them again during breakfast the next
morning, they talked about a centre they co-founded in China called the Agape Family Life House. The Agape Family Life House is also a Christian ministry
that reflects the deep faith shared by the Wyse family. The Wyses want to shine
a light to the world by showing that people with OI can be brought up to live
long and healthy lives.
The OI Foundation honoured Keith that evening with an award recognizing
his efforts to help improve the quality of life for children and youth with OI.
After the conference ended, I read more about Agape and the work it has done
and continues to do. Though I live in Canada, I want to help the ministry grow
any way possible.
The Wyses’ story moved me so much that I seized every
opportunity I could to spend time with them and get to know them. Meeting Keith
and Cheryl and their four children, and learning about the Agape Family Life
House, ranks as my favourite moment of 2012.
Thursday, 27 December 2012
Celebrating Renee
A couple of years ago I watched this TV documentary called Suck it Up Princess. It's about a young woman with muscular dystrophy named Renee Rodrigues. She was a tough, feisty and determined gal who managed to keep persevering when the odds were often stacked against her. She died last Friday (Dec. 21) at the age of 24. I never got to meet her, but I admired her and her ability to 'suck it up', as revealed in her documentary. Here's a clip from that special. RIP Princess.
Monday, 24 December 2012
Sunday, 23 December 2012
Wednesday, 5 December 2012
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