Wednesday, 17 July 2013

Getting involved with the Equal Grounds Training Project and the EyeWriter Demo


On Saturday, July 6, I took part in a pilot project and a product demonstration with a group of people at Ryerson University. Most of the participants, including myself, are tech-savvy and also seeking greater access to employment.

Terrence Ho, a business analyst with Bombardier Aerospace, started the Equal Grounds Training Project in response to the lack of employment opportunities offered to me and others living with disabilities. His passion to help others has largely stemmed from volunteering at a young age.

The day’s workshop began with some getting-to-know-you exercises, followed by role-playing and one-on-one discussions on personal skills and interests transferable to a professional environment.

After the workshop, we all took turns testing a demo of the EyeWriter. This is an eye-tracking computer program for people who are paralyzed or have difficulty using a mouse or keyboard. The software program was originally created for graffiti artist Tony ‘TEMPT’ Quan, who lives with ALS (aka Lou Gehrig’s disease). EyeWriter uses inexpensive cameras and vision software to track a person’s eye movements. The latest version of EyeWriter (3.0) continues to be in the early trial stages.

The day concluded with a dinner and a discussion on the next steps for the Equal Grounds Training Project. A follow-up workshop is planned for August 10 and 11.

Long-term goals are for us to host and take part in a TEDx conference next year, and to further develop the EyeWriter or other assistive-related technology.

Sunday, 7 July 2013

On turning 40

Two weeks ago today (June 23), I celebrated a milestone I wasn't sure I would ever experience. In the weeks and months leading up to my big day, I expressed interest in throwing a party. So many family members and friends came to share my 40th birthday with me. My party quickly has become one of the highlights of my year, and of my entire life so far. I know that God has blessed and strengthened me through all the joys and challenges I have faced. I am thankful for everything I've been allowed to have.

Monday, 17 June 2013

Facts About Monty Hall

Me with Monty Hall in 1994
During the weekend, Monty Hall received a Lifetime Achievement Award for his work in daytime television. The Daytime Emmy Awards honoured him in a TV career that has lasted over 50 years. 

I met Monty Hall back when he used to host a series of annual Variety Club Telethons that were broadcast throughout Ontario during the '80s and '90s. At 91 years old, he has aged well, and continues to be involved on the new Let's Make a Deal as a consultant.

Here are some facts about Monty Hall:

- He was born Maurice Halperin Jr. on August 25, 1921 in Winnipeg, Manitoba, Canada
- He is the son of Orthodox Jews who owned a slaughterhouse in Winnipeg 
- He graduated from high school at the age of 14
- Graduated with a Bachelor of Science degree from the University of Manitoba in 1945
- He has been married since 1947, with three children
- He changed his name while a disc jockey on CHUM radio in Toronto during the late '40s
- Well-known for his many philanthropic interests with organizations such as Variety Club
- Was a radio analyst for the New York Rangers hockey team during the 1959–60 season
- He hosted the game show Let's Make a Deal from 1963 to 1991
- Received a star on the Hollywood Walk of Fame in 1973
- He was awarded the O.C. (Officer of the Order of Canada) in 1987 for his services to broadcasting
- Inducted into Canada's Walk of Fame in 2002
- Inducted into the American TV Game Show Hall of Fame in 2007
- Ranked #4 on GSN's list of the Top 10 Game Show Hosts of All Time

Monday, 3 June 2013

My memories of Jean Stapleton

Jean Stapleton was one celebrity I had the pleasure of 'meeting' via Twitter in 2011. I've always been a fan of hers and of her Edith Bunker character on All in the Family (1971-79), one of my all-time favourite TV shows.

I was surprised when I discovered she had a Twitter account. She was 88 years old at the time, and had been retired for the past decade. Not being absolutely sure it was her official account or whether it was an imposter, I sent a message expressing my admiration for her. 

Six months later, I got a reply, and it made my day!


I wrote to her a couple more times after that. I told her how sad I felt when I watched the Archie Bunker's Place episode that dealt with Edith's death. She replied that by 1980, she felt the need to move on to other roles. I told her she did well, post-Edith, and liked her in the musical Something's Afoot (it was one of the first projects she took on after retiring the character). When she wrote about the time she met singer Etta James just before her death in 2012, I said I also liked her, and saw her perform once in Toronto. 

Shortly after we exchanged those messages, she closed her Twitter account. Stapleton died of natural causes on May 31, 2013, after living 90 wonderful years. I remembered her in a tweet the next day as "a sweet, classy lady." Rest in peace Jean, and Dingbat, xoxox.


Friday, 31 May 2013

CSSD Client Spotlight: Donald Barrie (Spring 2013)

The Canadian Society for Social Development wrote this profile about me that got published earlier this month. I graduated from its Web Design program five years ago. I can't believe it's been this long. They did a good job writing this story. I thank them on a job well done.

Monday, 6 May 2013

My first Wishbone Day

Today, May 6, is Wishbone Day. Wishbone Day is a relatively new occasion to spread awareness of osteogenesis imperfecta, or brittle bones. I am part of that rare breed of people who lives with this condition.
Wishbone Day involves wearing yellow and hanging out (if possible) with other people with OI. This past Saturday (May 4) I took part in my first Wishbone Day picnic and walk event. It was a fun day, and it was good to meet with other people with OI and their families (and, in some cases, their spouses).

The Wishbone Day concept developed of the Australian OI Conference in 2008. The first international Wishbone Day was observed in 2010, and it came to Canada in 2012.

Last July I met with some OI folk from Australia during the American OI Foundation conference held near Washington, DC. I even got to pose with Wishy, the Wishbone Day mascot.

I'm glad this awareness day exists since OI continues to be a condition that is often misunderstood or misinterpreted, even amongst medical professionals.

The Wishbone Day picnic took place in Cobourg, a town east of Toronto.

Friday, 26 April 2013

Happy Birthday Carol Burnett!

Carol Burnett is 80 years young today! I still remember clearly the day I met her. It was in 1983 during my first Variety Club Telethon (Ontario) appearance. My school choir and I sang songs from Annie, and afterwards she gave us all kisses and hugs.