Top 10 Myths About OI - 2016 (taken from an OI parent)
10) They don't have blue sclerae so it's not OI. (White, gray, gray-blue, or blue)
9) Kids with OI will "grow out of it". (Genetics)
8) OI is contagious. (Genetics, not infectious)
7) You think you can control a child's innate/biological instinct to move, crawl, stand, climb, explore. (You can't. Safe environment)
6) Every person with OI is affected the same way and presents the same way clinically, so should be treated the same way (spectrum condition, unique genetic information for each individual, individualized context based clinical care plans)
5) Toddlers are too young to have rodding surgeries (Fassier-Duval Rods - pulling to stand, weight bearing child)
4) Infants are too young to be started on medical therapies like IV Pamidronate. (Montreal Shriners - Glorieux, Plotkin, Rauch studies of late 90s/early 2000s)
3) The increased ambulation, activity levels, reduced pain levels, improved quality of life in children over the last 20 years are due to "nutrition". (See 4 & 5)
2) Infants, toddlers, children, adolescents, adults do not feel pain with fractures the older they get and more they have them. (Pain is real and affects recovery and long term outcomes)
1) Drinking more milk will cure OI. (Really?!)
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